In a pathbreaking move for public healthcare in India, Kerala has provided a life-saving treatment worth Rs 22 lakh annually — free of charge — to a 32-year-old woman from Thrissur suffering from haemophilia, a condition rarely diagnosed in women. This initiative marks the first time in India that such costly preventive therapy has been extended to an adult woman with the disorder.
A Landmark in Public Health
Health Minister Veena George announced that Kerala has become the first state in the country to introduce Emicizumab therapy, a cutting-edge preventive treatment for haemophilia patients. Previously available only to children under 18, the state government extended the benefit to this patient after she was diagnosed with haemophilia a few years ago.
Dr Rahul U R, Kerala’s child health nodal officer, explained, “Haemophilia predominantly affects men; women are usually carriers. Diagnosing haemophilia in women is extremely rare. Given her condition, we decided to start Emicizumab as a life-saving measure.”
A Rare Case of Resilience
The woman’s journey has been difficult. She endured uncontrolled bleeding, which led to the removal of her ovaries and uterus and required long-term hormone therapy. Recurrent bleeding and joint pain further complicated her life. Genetic tests finally confirmed haemophilia, opening the door for advanced treatment.
With Emicizumab prophylaxis, she is now recovering and stands as the first adult woman in India to receive this therapy through a government initiative.
Kerala Leading the Way
Kerala’s health department has been a front-runner in implementing innovative healthcare programmes, especially for rare diseases. This move highlights the state’s commitment to inclusive and equitable healthcare, ensuring that even rare-condition patients receive the care they need.
Health Minister Veena George said, “Kerala is setting a benchmark in haemophilia treatment. By expanding this programme beyond children, we’re ensuring no patient is left behind, irrespective of gender or age.”
